LINKS

1 The Forum/Guestbooks on the Cystic Hygroma network site are at http://cystichygroma.synthasite.com/

2 The U.S support group is http://www.staycalm.org/ or http://www.liamsland.org/

3 Facebook has a Lymphatic Malformations Awareness Group ( http://www.facebook.com/group.php?gid=36937652248 )

4 Jess has set up her own fantastic myspace page (http://www.myspace.com/lmchawareness) to increase LM awareness 

5 For those whose LM also involves a trachioctamy then a very useful site is http://www.actfortrachykids.com/

6 We are great supporters of the charity Changing Faces : http://www.changingfaces.org.uk/Home

7 Kody Barrowmans story http://www.mymultiplesclerosis.co.uk/million/kody-barrowman.html

8 Ethans story http://ethansjourney.co.uk/default.aspx

9 http://www.vbiny.org/